Experts share unusual early warning signs of the disease: 'There's more to look out for than just a bad memory'
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Experts have shared ten common warning signs that someone you love—or yourself—is developing dementia, an incurable memory-robbing disease.   

Dementia is Britain’s biggest killer, and there are around 944,000 people in the UK living with the condition, and around 7million in the US. 

There are several types of dementia, but the most common is Alzheimer’s Disease which affects around six in 10 people diagnosed with the condition. 

Although a cure for dementia has not been discovered, early detection can facilitate the development of personalized treatment strategies and enable physicians to recommend medications and therapies that may delay the progression of the disease.

Helen Metcalfe serves as one of the 450 Admiral Nurses at Dementia UK—a team of caregivers offering support to individuals diagnosed with the disease and their families. She possesses firsthand insights into how the condition manifests across various stages.

In a conversation with The Telegraph, Ms. Metcalfe described some early warning signs of the disease that, in retrospect, family members identify as notable behavioral shifts.

She remarked, ‘The brain is an exceedingly complex organ, and each individual’s experience is uniquely different. Typically, it’s only following a diagnosis that families reflect and notice there were subtle indicators that went unrecognized at the time.’

The publication also consulted Jonathan Schott, who holds the position of chief medical officer for Alzheimer’s Research UK and is a professor of neurology at the Dementia Research Centre, UCL.

While there is no cure for dementia, early diagnosis allows time for personalised treatment plans to be put in place (file photo)

While there is no cure for dementia, early diagnosis allows time for personalised treatment plans to be put in place (file photo)

He pointed out that, while memory loss is a commonly recognized symptom when identifying dementia or Alzheimer’s, often memory remains unaffected and the disease manifests in other aspects.

Professor Schott said: ‘There’s more to cognition than memory. Sometimes there are people who have dementia and whose memory is fine. 

‘Instead, the condition may affect their vision or their behaviour.

‘We think that the underlying brain changes that cause dementia happen many years before symptoms arise, and start slowly and subtly.’ 

Between them the experts revealed nine early signs of dementia which can appear along with—or without—memory loss.

Some of the early warning signs can be found in changes to someone’s usual behaviour—they might start acting in ways which are socially unacceptable, such as taking food from other people’s plates. 

There could be more worrying behaviour come into play at the dinner table, with the experts citing a change in dietary habits as being something to look into. 

Ms Metcalfe said that if someone starts to like or dislike a food, that can be a red flag. 

Dementia is Britain's biggest killer, and there are around 944,000 people in the UK living with the condition

Dementia is Britain’s biggest killer, and there are around 944,000 people in the UK living with the condition 

Around 900,000 Britons are currently thought to have the memory-robbing disorder. But University College London scientists estimate this will rise to 1.7 million within two decades as people live longer. It marks a 40 per cent uptick on the previous forecast in 2017

Around 900,000 Britons are currently thought to have the memory-robbing disorder. But University College London scientists estimate this will rise to 1.7 million within two decades as people live longer. It marks a 40 per cent uptick on the previous forecast in 2017

‘They may develop an aversion to certain food colours, textures or smells. Some may report a metallic taste,’ she said.

Another form of the disease, Lewy body dementia (LBD), which is related to Parkinson’s disease, can cause sufferers to struggle with coordination. 

The loss of their fine motor skills can make using cutlery and feeding themselves difficult. 

LBD can also cause visual hallucinations. Professor Schott said: ‘They are typically silent and non-threatening. 

‘They are often small. For example, someone will see a crumb on the carpet that’s not there.’ 

If someone begins to crave sweet foods, that can be a symptom of Frontotemporal dementia (FTD) the rare dementia which Hollywood star Bruce Willis was diagnosed with in spring 2022.  

Another classic symptom of FTD is changes to someone’s personality. 

This can look like a loss of sympathy, empathy and humour—which can also mirror typical symptoms of depression. 

People with dementia benefit from getting an early diagnosis (file photo)

People with dementia benefit from getting an early diagnosis (file photo)

Alzheimer's disease is the most common cause of dementia. The disease can cause anxiety, confusion and short-term memory loss

Alzheimer’s disease is the most common cause of dementia. The disease can cause anxiety, confusion and short-term memory loss

‘Laughing at things which might be inappropriate, or not finding things funny that they formerly found amusing can also be a symptom,’ said Ms Metcalfe.

10 early warning signs of dementia 

 

Different sex drive 

Unusual behaviour 

No empathy 

Change in eating habits 

Nightmares 

Hallucinations 

Eyesight problems 

Bumping into things 

Different speech 

Memory loss  

One form of FTD, primary progressive aphasia (PPA), can stop people from understanding words and using limited language, which Professor Schott describes as ‘losing their own personal dictionary…They can’t quite find the correct word and talk in generalities.’

Another subtype of FTD—behavioural variant FTD (bvFTD)—can amplify some sufferer’s sex drives, causing them to act in ways which can be shocking and upsetting to loved ones. 

Professor Schott explained: ‘Some people with bvFTD can become disinhibited and display inappropriate sexual behaviour, such as making sexually explicit comments to strangers or loved ones.’

The link between Alzheimer’s Disease and vision issues are well documented, with people unable to find things on cluttered surfaces 

Professor Schott said that sometimes these problems can be due to a rare form of the condition called posterior cortical atrophy which is ‘characterised by progressive degeneration of brain cells in the back of the brain. It tends to affect people in their 50s and 60s.’ 

Vision issues can also show up as banging into things. Ms Metcalfe said: ‘You might notice someone bumping into an object. 

‘It’s quite common that someone thinks a step is there when there isn’t one. 

‘As a dementia specialist nurse, if I hear that someone’s had a fall, I will be assessing whether that could be a depth-perception issue.’

 The final warning sign was having nightmares. Ms Metcalfe said: ‘People might report that their dreams have become more vivid. 

‘What we sometimes see in dementia is more movements during sleep. We think that this is a response to very vivid dreaming.’

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