'Flu left me needing a double lung transplant — this NHS change gives me hope'
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Claire Davies

Claire hopes the change will increase her chance of finding a match (Image: Courtesy Claire Davies)

A woman who is waiting for a double lung transplant after severe flu slashed her lung capacity to 30% has described a new NHS trial as “a shining light of hope”. Several major hospitals in England are running a pilot of techniques to keep donor organs preserved for longer. The scheme could see the number of transplants carried out annually rise by up to 750, including around 200 more lung transplants.

A woman on the brink of receiving a double lung transplant, after influenza drastically reduced her lung function to merely 30%, has hailed an innovative NHS trial as “a beacon of hope.” Several leading hospitals across England are piloting advanced methods to prolong the preservation of donor organs. This initiative could potentially increase the annual number of transplants by up to 750, including approximately 200 additional lung transplants.

At 41, Claire Davies is anxiously waiting for a suitable donor while keeping her hospital bag ready for a quick departure as soon as a match is identified. She expressed her admiration for the new perfusion techniques, which involve the circulation of oxygenated blood or nutrient-rich fluids through organs, calling them “remarkable and an incredible leap forward in organ donation technology.”

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Claire remarked, “This pilot scheme is like a beacon of hope. It signifies an increased likelihood of finding a match, assurance that the lungs are thoroughly vetted and perfect for you, and the promise of regaining your quality of life. Most importantly, it offers solace to donor families, ensuring their loved ones’ lungs are utilized effectively.”

Hailing from Teeside in North Yorkshire, Claire was diagnosed with bronchiolitis obliterans and severe cystic bronchiectasis during her childhood, conditions that led to persistent breathlessness. Her situation worsened in 2022 when she was hit by a severe flu that “utterly debilitated me.”

Claire’s lungs were permanently damaged and simple tasks such as making a cup of tea or cooking leave her breathless. She now relies on supplemental oxygen 24/7. She receives 22 cylinders per week and has to carry it whenever she leaves the house.

Claire was first added to the NHS transplant waiting list in May 2025, then temporarily removed due to illness. She was reactivated last month. There is no way to predict when a match will be found.

Claire with oxygen cylinders

Claire must carry a constant supply of oxygen when she leaves the house (Image: Courtesy Claire Davies)

She added: “They have told me that I’m going to be waiting longer because I need small adult lungs — I’m 4′ 10″. Small lungs obviously don’t come up often. I’m very scared of the operation. But when everything else has failed, it’s your last chance of hope. There is so much strict criteria to get onto the list and I feel very lucky that they’ve given me a chance to maybe live again, the hope to get my quality of life back.

“Because I’ve never had two fully working lungs before my life, I don’t know what that feels like. What could I do and how will I feel?”

The preservation techniques will buy more time for medics to carry out the checks needed to accept organs for operations. NHS Blood and Transplant (NHSBT) said changes were needed to save more organs due to the record high transplant waiting list, which stands at more than 8,000 people.

The first lung pilot centre has opened at Royal Papworth Hospital in Cambridge and will be followed by lung pilot sites at the Freeman Hospital in Newcastle and Harefield Hospital in London.

Claire, who works from home as a registered nurse, added: “The NHS gets a lot of flack but things like this which can change people’s lives are just remarkable. Those people who are dedicated to their jobs and improving people’s lives are the real heroes. This could potentially improve and save more patient’s lives who are so desperately waiting for their gift from selfless donors.”

Claire now works with Asthma + Lung UK to raise awareness of lung conditions.

Dr Andrew Whittamore, the charity’s clinical lead, said the NHS trial was “incredibly encouraging news for people living with serious lung conditions who are waiting for a lung transplant”.

He added: “For many, the wait can be long and uncertain, and sadly not everyone receives the organ they need in time. In that time spent waiting, they are going to be massively limited by their symptoms while also coping with the added burden of not knowing whether they will be lucky enough to get a new lease of life. “

Anthony Clarkson, NHSBT director of organ and tissue donation and transplantation, said: “There is an urgent need to innovate in organ utilisation. “Survival on the transplant waitlist is a daily struggle, and hundreds of patients will die this year before they can receive a life-saving transplant.

“Donation alone cannot close the gap. This programme will help us preserve donor organs so we can assess them and make the best use of the gift of donation.”

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