I lost my eye aged 2 – nothing could prepare my parents for what came next
Share this @internewscast.com

I was diagnosed with unilateral retinoblastoma (eye cancer in one eye) at the age of two-and-a-half years old after my mum noticed a white glow in my right eye. I was referred to The Royal London Hospital (RLH), where we saw my consultant at the time. He wanted us to stay there to have my eye removed straight away to get rid of the cancer, but my parents decided to take me home to see my family before returning to have the surgery.

Due to my parents being very young when I was diagnosed, it was a huge shock, as you can imagine, for them and everyone else in the family. They didn’t expect to go through such a thing with their two-and-a-half-year-old daughter — no parent or family would. Nothing could prepare you to face such a traumatic experience – and it didn’t end with the surgery.

They had to research what retinoblastoma was themselves and, from what I’ve understood, didn’t really have much support at the time. It was a huge thing back in 2002 — very different from today, now that there are social media accounts for others to talk about their experiences and the support of amazing organisations like the Childhood Eye Cancer Trust.

When I was younger, my parents even had to pin me down during ocularist appointments. I used to hide when it was time for my prosthetic eye to be taken out, polished, and my socket checked, which was traumatising and uncomfortable, as you can imagine.

This can be very difficult for a child – or anyone: that feeling of having “a part of your body missing” for 10–15 minutes or more at a time. It just wasn’t nice.

Otherwise, I was just getting on with life and growing up — learning to understand that my parents did this for me and that it saved my life when my eye was removed and replaced by a prosthetic eye.

And now, I wouldn’t change it. For me, one eye basically works as two, and I don’t notice any difference because I’ve had it from such a young age.

Having had retinoblastoma in the past and a prosthetic eye at the age of three years old, it was all I had ever known. I count myself as one of the “lucky” ones who didn’t need further treatment.

Sadly, I lost my right eye — but this shaped me into who I am today: a proud 25-year-old woman, hoping to help others and raise more awareness about the condition through my social media and by making it a normality for those around me.

Mental health support is important because retinoblastoma affects every individual and family differently. Some may not feel happy with how others view their prosthetic eye, which can cause self-esteem issues and impact mental health. It can lead to bullying for some children, such as name-calling.

I was lucky, I had a great prosthetic eye match from my ocularist, and I couldn’t remember life before, which made a huge difference for me.

Even though this type of cancer has a 98% survival rate, the experience can still be brutal. For those in remission, the fear of it returning can continue to weigh heavily on the mind, as well as the fear of second cancers as you grow into adulthood.

That’s why it is extremely important to normalise conversations about cancer — and its mental health impact. Because even though I have not let having a prosthetic eye hold me back, I know that many are deeply affected by cancer, and so having the right mental health support is crucial.

This is why I’m backing the Daily Express’s Cancer Care campaign to ensure patients receive mental health support both during and after their treatment.

Share this @internewscast.com
You May Also Like

Jesy Nelson’s Twins Battle Rare Muscle Disease: Crucial Warning Signs Parents Must Recognize

Medical professionals have commended singer Jesy Nelson for openly discussing her twins’…

EastEnders’ Lorraine Stanley Shares Inspiring Journey of Losing Seven Stone Through Weight-Loss Surgery

One year after her departure from EastEnders, Lorraine Stanley has opened up…

Keep Your Home Cozy and Safe: Why You Should Place Bowls of Water Near Heaters This Winter

As the chill of winter sets in, Britons are being advised to…

Fit and Healthy Woman, 34, Alleges Unauthorized Surgery by Doctor Resulted in Chronic Pain

Jenna Frerichs recalls her surgeon viewing her as akin to a daughter.…

MAFS UK Star Amazes Fans with Dramatic 8-Stone Weight Loss: Discover Her Top 5 Transformation Secrets

A star from the UK version of “Married At First Sight” has…

Top 3 Smart Rings to Boost Your Health Resolutions for the New Year

The Samsung Galaxy Ring connects to an app for health insights and…

Revolutionary NHS ‘Online Hospital’ Launches to Address Prostate and Menopause Health Issues

A revolutionary ‘online hospital’ is set to reduce waiting times for NHS…

Britons Consume Salt Equivalent to 22 Bags of Crisps Daily, Heightening Risks of Heart Failure, Dementia, and Diabetes

Recent research reveals that adults are consuming an alarming amount of salt,…

UK Study Explores Impact of Severe Weather on Cancer Treatment Access

In a groundbreaking study, scientists are investigating the impact of severe weather…

Clinic Overwhelmed by Young Ketamine Users, Some as Young as 12, Suffering Severe Internal Damage, Reveals Specialist Treating Parkinson’s and MS Patients

As a urologist, I specialize in addressing incontinence and bladder issues that…

Misdiagnosed Torn Ligament Reveals Life-Threatening Condition: 31-Year-Old Given Decade to Live

Sean Sweeney with wife Lucy and father-in-law Carl at Sir Chris Hoy’s…

Why the NHS is Concerned About Your 3 AM Wake-Up Calls

The NHS has issued a notice for those who frequently find themselves…