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“There is always that chance it could go wrong,” he said. “It’s a ticking time bomb, as we just don’t know if she will reach full adulthood.”
He reflected: “It is what it is – we wouldn’t help her by mulling over it, so we try to stay positive for her.”
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Turning his thoughts towards the positives, Rob shared: “Lacey really enjoys school, and even when she feels poorly, she loves learning.
“The school has been really great – they’ve supported her in learning braille and managing her mobility, with lots of support in other departments.”
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