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Ben Crofts opts for solitude during mealtimes, taking his plate to a separate room to eat alone. This is because he experiences misophonia, a condition characterized by an intense aversion to certain sounds, such as chewing and crunching, which provoke strong emotional or physical reactions.
The 50-year-old musician from Somerset has battled with this condition throughout his life, resulting in strained relationships and significant anxiety.
Ben’s struggle is not unique. Research indicates that around 20% of individuals report signs that align with misophonia.
“It’s challenging to distinguish between a common dislike of certain noises and the severe aversion seen in misophonia,” says Julia Simner, a neuropsychology professor at the University of Sussex.
She estimates that about 9% of the population, or approximately six million people in Britain, suffer from severe misophonia.
“While many people might find slurping sounds unpleasant, those with clinically significant misophonia experience extreme rage and disgust, making it tough to cope with daily life,” Simner elaborates.
Eating sounds are the most common trigger for people with misophonia, adds Professor Simner.
âSome dislike crunching while others dislike âwetâ sounds, such as eating yoghurt. But we know there are other common triggers â such as ticking clocks or clicking keyboards.â
Ben Crofts suffers from misophonia â an intolerance of sounds, where noises such as chewing and crunching trigger emotional or physiological responses
A recent study of those with misophonia, led by ÂProfessor Simner, identified at least 39 Âdifferent triggers.
Whatever the trigger it can have serious implications, as Professor Simner explains: âEven as Âchildren, people with misophonia had significantly poorer life satisfaction, quality of life, anxiety, depression, obsessive compulsive traits and emotion dysregulation [ie, feeling negative emotions sooner, deeper and for longer than other people].
âIt can affect everyday life in almost every way: leading to work avoidance, school avoidance, family conflict, loneliness, isolation, frustration.â
People with misophonia may find the actions of others, even loved ones, intolerable, she says. âThis can drive wedges between friends and family members.â
Zara Kadir, a family psychotherapist at The Therapy Shed in Kingston upon Thames, says it is not uncommon to see misophonia put strain on relationships.
âMisophonia can turn bonding experiences [such as shared meal times] into moments of stress and disconnect.
âThe triggered party can feel unsafe, guilty, overwhelmed and misunderstood â while the trigger [ie, the person making the offensive noise], feels overly criticised, rejected and Âcontrolled.â
She adds: âIf itâs approached with understanding, small practical adjustments â maybe even humour â it can be overcome.â
Misophonia had been considered a form of anxiety disorder â but new research in the Annual Review of Clinical Psychology concluded that the anger, irritation and resentment that it Âtriggers suggest otherwise.
There is research that shows that in people with misophonia, certain parts of the brain become switched on when they hear their âtriggerâ sounds.
A 2017 study published in Current Biology based on scans of people with the condition found that a key âalarm systemâ in the brain switched on far more strongly than in other people, explains Professor Simner. The brain areas involved are called the salience network.
âThis decides whatâs important and demands attention,â she explains. âIn ancient times, it would have lit up in a human the moment they spotted a lion on the horizon because it signals âpay attention â take careâ.
âA crucial region in this network is the anterior insular cortex; it became especially overactive in people with misophonia. In other words, the misophonic brain reacts to these noises as if theyâre as impossible to ignore as a lion.â
Itâs unclear why some people develop misophonia, though it is partly genetic. And women seem to have stronger symptoms than men, says Professor Simner.
Ben was 12 when he first noticed feeling aggravated by the noise others made when eating.
He recalls: âI remember feeling really annoyed if someone chewed near me. But I had no way of explaining this, so I ignored it.â
But it got worse. Soon, tapping and clicking â common sounds in classrooms â began to aggravate him too. âIt became outright rage â Iâd have to remove myself from the room,â says Ben.
âConflict was never far away, often resulting in being removed from a class. In the long run it negatively affected my results.â
Ben married young and had children in his 20s.
âChildren make noise and so this exacerbated it,â he recalls. âScreaming could, at times, Âtrigger me. High frequency and discordant sounds seem to be more powerful triggers.
Zara Kadir, a family psychotherapist, says it is not uncommon to see misophonia put strain on relationships
âBy now, it was way past irritation and made me irrationally mad. Iâd never get violent, but if I let myself I would turn a place over or tear someone apart â thatâs how angry noises made me.â
It led to rows with his wife at the time, who he could not stand to be around when she was eating or making certain noises.
âWe divorced after five years,â says Ben. âThe constant fight-or-flight state I would be in made me far from pleasant to be around.â
It was around the time his marriage ended that Ben came across the term misophonia online.
âIt sounded just like me â so I went to my GP to get help,â he says. But over the years he was told variously it was depression and âthere was nothing they could doâ â or he was met with âblank stares or a smirk, no one seemed to know what it wasâ.
One GP even referred Ben â without his knowledge â to a dementia service. (âThey were as confused as I was and told me not to come!â he recalls.)
Professor Simner says that treatment and referrals for misophonia can vary depending on whether your GP is sympathetic.
âYou may be referred to an Âaudiology clinic,â she says. âThey may run an assessment to provide a diagnosis and rule out hyperacusis.â (Here, ordinary sounds feel physically too loud or even painful â whereas misophonia involves how the brain interprets sound.)
Some experts suggest white noise or background music can âdrown outâ triggering sounds.
Surprisingly, Ben finds his work as a musician peaceful.
âWhile Iâm making music itâs one of the few times I can relax knowing I wonât be triggered,â he says.
In the studio, he is in control of the noise. Ben says: âIn daily life, I canât control someone crunching or rustling a packet â but in a studio, I control the sounds.â
Apart from a brief spell trying antidepressants in his 30s, Ben has had no help from doctors.
He says: âIâve tried many times over the years to access help for misophonia â but thereâs been no progress and itâs been a demoralising journey, resulting in a much adjusted way of life for me.â
Ben, a 50-year-old musician from Somerset, has lived with misophonia all his life â it has ruined relationships and caused him immense anxiety
Some experts suggest white noise or background music can âdrown outâ triggering sounds. Surprisingly, Ben finds his work as a musician peaceful. âWhile Iâm making music itâs one of the few times I can relax knowing I wonât be triggered,â he says
It has made new relationships difficult, for instance.
âPartners felt unable to make me comfortable, or maybe didnât feel it was their problem,â says Ben. âItâs an unreasonable Âscenario for most to tolerate.â
Then, seven years ago, he met Jane, 46, a firefighter.
âI told her from the offset that I had misophonia as so many relationships had failed before,â says Ben. âShe didnât baulk and vowed to support me â and she has.â
Jane found charities and support groups for Ben to join, and adapted to his needs.
âWe cook together and then eat in separate rooms,â he says. âIt may not be family-friendly, but it works for us and gives me peace.â
Ben still regularly has to leave meals and social events if his misophonia flares up.
âI donât even excuse myself any more,â he says. âIf someone is crunching or rustling, I just get up and leave. The rage I feel Âotherwise is overwhelming.â
He adds: âI hope my story encourages GPs and medical professionals to learn more about misophonia. It wrecks relationships, careers and social lives.â
If you or someone you know may be affected by misophonia, visit misophonia-hub.org for support.