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A third of people in the UK admit they would panic if someone near them experienced an epileptic seizure. More than half of British adults are concerned they wouldn’t know what to do if they witnessed a stranger collapsing and having a seizure in public, a survey of 2,000 adults reveals.
Most individuals have never been taught how to manage such situations, and they fear their actions might worsen the condition. Additionally, 16% believe someone nearby would be more qualified to help. Many respondents felt more comfortable handling situations related to broken bones, choking, or panic attacks.
Seizures can appear in various forms, some subtler than others. Yet, many people admitted they’d only identify a seizure if the person was visibly convulsing on the ground.
In these scenarios, one in ten said they would instinctively attempt to restrain the individual, which experts advise against. Some would mistakenly try to insert something into the person’s mouth to stop them from biting their tongue.
Rebekah Smith, the CEO of Epilepsy Action, who initiated the study as part of the ‘Could I Count On You’ campaign, described the findings as ‘shocking’ and ‘truly concerning’.
Given that one in every 100 people suffers from epilepsy, Rebekah emphasised “it’s vital we know the basics to help them.”
Further research of 891 who have the condition found the majority thought it was unlikely a member of the public would step in, in an emergency
Over half worried that they could harm themselves seriously, with no one nearby to ensure their safety until the seizure stopped. Similarly, this group highlighted concerns that others might misinterpret, judge, or be afraid of them during an episode.
Nearly half stated they would feel ‘very reassured’ if the public had a better understanding of how to respond in these situations.
Murray Goulder, 45, from Crawley, suffers from absence seizures, which means he can walk without any awareness of his actions or location during these episodes.
The survey indicated that if a member of the public saw someone walking towards a busy road, a seizure would be one of the last reasons they would consider for their behaviour.
One day, whilst making his way back from work at Farringdon Station, Murray discovered himself heading towards a platform.
“I remember walking down the stairs,” he recalled, “then being told I had dropped my bag and walked towards the platform.”
Luckily, a compassionate stranger stepped in.
This good Samaritan not only stopped Murray but also joined him on the next train, journeying 45 minutes out of his way to get him to the local station team who ensured Murray reached home safely.
Rebekah added: “Seizures are more common than people think and can take many forms, from convulsive seizures to brief episodes of lost awareness.
“Most stop within a couple of minutes, that’s why staying calm is so important – it allows you to think clearly, provide reassurance, and respond in a way that’s helpful rather than harmful.
“Your presence and level-headedness can be incredibly reassuring for the person when they regain awareness. The best thing you can do for someone having a seizure is to remain calm, keep them safe, and wait it out.”