ALS: the rare disease that isn't fully understood

ALS: The Mysterious Rare Disease We Still Don't Fully Comprehend

In Savannah, Georgia, May marks Amyotrophic Lateral Sclerosis (ALS) Awareness Month, yet ALS United Georgia emphasizes the importance of continuous awareness and support throughout the year.

ALS United Georgia explains that ALS is a rare disease that can strike anyone at any age, with causes that remain a mystery. The condition may start with difficulties in speech and swallowing or initially affect a person’s foot, eventually leading to full paralysis.

“My voice is deteriorating, I can still walk but I have a limp. In time, I will likely experience excess saliva and be unable to swallow,” shared Beth Brock, who is living with ALS. “Whenever I think about that future, I remind myself that for now, I can still talk and move around, and that makes me feel happy.”

Brock described her ALS as something she has to take day by day. She remains hopeful as she is surrounded by friends and family but is worried for the next generation.

“I really think about these young adults who are going through this, and I want there to be research. I want them to find this solution” Brock said.

ALS United of Georgia offers services year-round for individuals who are affected by ALS. Their mission is to “enhance the lives of people living with ALS, until they find a cure.”

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