Family embraces life with baby battling rare, fatal genetic disorder
Share this @internewscast.com


OLATHE, Kan. Five months ago, Christina and Adam Hannan were celebrating the arrival of their sixth child, a beautiful baby girl named Annalise.

But the joy of her birth quickly turned to heartbreak. Annalise wasn’t crying. She wasn’t moving. Something was wrong.

Doctors diagnosed her with congenital hypomyelinating neuropathy, a condition so rare that fewer than 50 cases have ever been recorded worldwide, and only seven people are known to be living with it today.

It affects the development of nerves, leaving babies with very low muscle tone. They can’t swallow, cry, or even cough. Most don’t live past the age of three.

“This is Annalise,” her father Adam says. “Annalise was born with a super rare genetic disorder.”

What makes Annalise’s story even more unbelievable—the Hannans have lived this nightmare before.

Fourteen years ago, their son Myles was born with the same rare disorder.

“We know one of the 50 because he was our son,” Adam said. “We had a son with this same condition” Adam continued on to say.

Myles lived for just 20 months.

So, this time around, every moment with Annalise matters even more.

Annalise doesn’t cry. She breathes through a trach. She eats through a feeding tube. And each night, she sleeps connected to a ventilator.

Yet to her parents, she is not defined by tubes or machines. She’s defined by joy.

“It’s horrible, but every day is a gift. So you wake up, and it’s like—we have today” Christina Hannan, Annalise’s mother said.

“It’s both hard and good at the same time, our mission is to let her know that she is loved—as much and as often as we can,” Adam said.

That mission is shared with Annalise’s four siblings, who help care for their baby sister with quiet strength and compassion.

The Hannans are not sugarcoating the pain. They live in the tension of knowing their daughter could pass away at any moment. But they refuse to live in fear.

“We have to – that the thing you have to put one foot in front of the other you just have to there’s no choice so we proceed with joy,” Adam said.

Annalise may never walk or speak. But she feels love, she shows joy and she matters.
For the Hannans, that’s everything.

Share this @internewscast.com
You May Also Like

Trump Appoints Sean Duffy as Temporary Head of NASA

President Trump said late Wednesday that he was tapping Transportation Secretary Sean…

Oklahoma Couple Accused of Keeping Over 50 Animals in Their Home

EL RENO, Okla. (KFOR) – An El Reno couple is facing criminal…

New Data Reveals Detention Centers Exceeding Capacity Limits

McALLEN, Texas (Border Report) — A recent report indicates that migrants detained…

Man Sentenced for Murdering Girlfriend and Staging It as a Suicide

Editor’s Note: This article contains discussions of suicide. Reader discretion is advised.…

Live Stream: Forest Service Chief Provides Testimony to the Senate

National Forest Service (NFS) Chief Tom Schultz on Thursday will testify before…

Twin sisters in Texas Generate $10,000 for Camp Mystic by Selling Lemonade

() Nine-year-old twins who attended summer camps devastated by recent flooding have…

Trump Administration Files Lawsuit Against California Regarding Egg Costs

The Trump administration has filed a lawsuit against California, alleging that three…

Denver Bar Introduces the $2,500 “Gilded Martini” Cocktail

DENVER (KDVR) Tucked away in an alley, inside a hotel that was…

Recently Released from ICE Custody, Mahmoud Khalil Sues Trump Administration for $20 Million

NEW YORK – One afternoon, Mahmoud Khalil found himself in his Manhattan…

The United States is experiencing its highest number of measles cases in over 30 years.

The U.S. is having its worst year for measles spread in more…

Planned Parenthood Clinics Start Turning Away Medicaid Patients

() Two regional Planned Parenthood affiliates have stopped accepting Medicaid, citing a provision…

Rubio Engages with Russian Foreign Minister Amid Escalating Ukraine Tensions

WASHINGTON () Secretary of State Marco Rubio announced that the United States…