Nikki Estrada took her baby girl, Xenrea, who was four months old at the time, to the hospital because she became dehydrated from a low milk supply.
During their hospital visit, doctors noticed a red patch on Xenrea’s cheek. They prescribed a five-day course of antibiotics, a 14-day regimen of topical steroid cream, and bleach baths as a preventive measure in case the skin had developed an infection.
“I thought it was a normal baby skin rash, I didn’t suspect it was eczema,” Estrada said.
“My gut instinct was like, this is wrong, she doesn’t need it… but you just think, I’m gonna listen to the doctors.
“And it worked, the little patch on her cheek, it was gone.”
But two days after finishing the prescribed topical steroid cream treatment, she said her daughter’s symptoms worsened.
“As soon as I stopped, it just came back with a vengeance,” Estrada said.
“It’s broken, it’s open, it’s weeping, she doesn’t sleep.
“I can’t sleep because I need to hold her so she doesn’t scratch.
“Her mouth cracks and bleeds from trying to eat.”
Faced with a dire situation, Estrada consulted with a GP and a pediatrician, both of whom advised continuing the topical steroid treatment until the symptoms improved.
By that time, she had begun researching topical steroid withdrawal (TSW) online and had found similar cases in online support groups.
TSW is characterised by red, burning and itchy skin, that sometimes presents after ceasing prolonged or high-potency steroid treatment.
“Speaking to other mothers, it sounded like she was going through a withdrawal, because, you know, I only applied (steroid cream) to her face, but it was everywhere on her body, which was identical to other parents and their kids,” she said.
“First, it becomes really, really red and hot and burning, and then the body will ooze, the skin barrier breaks, and then it scabs, and because it’s so dry it bleeds and it’s prone to infection, and it’s just a cycle until the new skin comes back up.”
Estrada is now seeing a naturopath and says her daughter’s skin is slowly improving with the use of natural creams, and prebiotic and probiotics for her gut health.
“It’s just been so heartbreaking seeing my daughter in so much pain and she’s only six months old,” she said.
“I feel like I’ve still got months until her skin’s gonna go back to how it was.”
According to Professor Deshan Sebaratnam, a dermatologist at The Skin Hospital in Sydney, side effects from the use of steroid creams such as TSW are rare.
“When used for skin conditions which come and go like eczema, where you are only applying them for a few days then taking a break, side effects are vanishingly rare,” Sebaratnam said.
“When patients stop using their steroids, their underlying skin disease can flare back up, and sometimes this can be confused by people as dependency or addiction â which it isn’t.
“Patients need to also consider the effects of not controlling their eczema â itch, pain, increased risk of infection, sleep disturbance, cost, the impact on the whole family et cetera.”
Eczema is often worse in winter, due to low humidity, long hot showers, and irritation caused by people wearing extra layers, heating and electric blankets.
Melody Livingstone, CEO of Australian skincare company MooGoo, said sales of their eczema and psoriasis creams had doubled this winter, compared to last year.
“Australia has one of the highest incidences of eczema in the world, and it is only getting worse â 50 years ago, only one in 10 Australian children suffered from it,” she said.
Eczema, also known as atopic dermatitis, is a chronic, debilitating disease that affects 2.8 million Australians, including one in three Aussie kids under the age of six.
Management includes keeping the skin moisturised and avoiding triggers such as soap, fragranced washing detergents, prickly fabrics, and heat.
Topical steroid creams, when used under the supervision of a doctor, are widely considered by doctors and specialists to be a safe treatment for flare-ups.
Please note the information in this story is general in nature. Please always consult your GP or health professional for advice that is tailored to your specific health concerns.
