In the United States, only about 24 adults are diagnosed with this exceptionally rare illness each year, according to medical experts.
PHOENIX — A young woman from Phoenix is on the road to recovery after suffering from a rare, life-threatening illness that most doctors encounter only in medical literature.
Just weeks ago, 24-year-old Trinity Peterson-Mayes was in perfect health. However, an evening out with friends took a dramatic turn, leaving her nearly paralyzed, as reported by 12News.
Peterson-Mayes, who works as a wedding planner, recalls how the situation unfolded after she decided to sample a friend’s homemade fermented swordfish.
“Honestly, it tasted awful,” she admitted. “But it’s supposed to be healthy, so I thought I’d give it a try. I figured at worst, I’d end up with a stomach ache.”
Unfortunately, the situation became much more severe. Just days after trying the dish, she began to experience alarming symptoms.
“I noticed that when I was chugging water, I wouldn’t be able to chug it. It was going down the wrong pipe, and then slowly, over the course of 24 hours, I went from not being able to chug water to not being able to drink any water at all,” she said.
After nearly choking on a sip of coffee, she rushed to the hospital. At first, doctors were unsure what was wrong.
“They wanted to send me home after the first hospital I went to,” she said.
Peterson-Mayes insisted something wasn’t right. After being transferred for specialized neurological care at St. Joseph’s Medical Center and Barrow Neurological Institute, doctors diagnosed her with botulism.
“Botulism is extremely rare, and most emergency physicians go their whole career without seeing a case,” said emergency physician Dr. Frank LoVecchio, who added that there are about two dozen cases of food botulism per year on average.
Botulism is caused by a bacteria-produced toxin that can grow in low-oxygen environments, including improperly canned foods.
“It’s a neurological toxin which can cause blurred vision,” LoVecchio said. “It causes this paralysis of your muscles, and most important being, you know, your chest muscles, those that are responsible for breathing.”
As the toxin spread, Peterson-Mayes’ condition worsened, and she was placed on a ventilator.
“I woke up, and I had three IVs. I was intubated, I had a central line in my neck, and I had an NG tube … and I just woke up, and I couldn’t move at all. It was very scary,” she said.
A life-saving antitoxin was administered, and Peterson-Mayes is now beginning the slow process of recovery.
“I wasn’t able to talk before,” she said. “I wasn’t able to walk.”
She said five other friends also ate the fermented swordfish. Two of them developed botulism, as well.
Peterson-Mayes said her friends are now out of the hospital. She expects to leave Barrow Neurological Institute in about a week but said it could take months before she feels normal again.
She is no stranger to medical battles. Peterson-Mayes previously survived childhood cancer twice.
An online fundraiser has been started to help cover medical bills and living expenses.
As for her diet going forward, seafood might be off the menu for a while.
“I am scared of sushi now too,” she said. “Canned food, sushi, I don’t know about that anymore.”
