Share this @internewscast.com

PORTLAND, Ore. (KOIN) — A 5-year-old boy with a rare genetic disorder got an out-of-this world experience when characters from a galaxy far, far away gave him a proper Star Wars day sendoff at Portland International Airport Sunday morning.

At 17 months old, Raiden Pham was diagnosed with UBA5, an ultra-rare progressive and life-threatening genetic disorder. It can lead to severe movement disability, cognitive impairment, seizures, as well as complications affecting breathing, vision and the gastrointestinal system.

According to OHSU, only 40 children in the entire world have been officially diagnosed.

In a gift made possible by Make-A-Wish Oregon, Raiden and his family received a trip to Disney Aulani in Hawaii.

But as they were making their way to the gate, in-costume volunteers from Star Wars Oregon and the Concordia Clan greeted him in a sendoff fit for a Jedi knight.

  • Raiden Pham (center) was given a proper sendoff by volunteers dressed as Star Wars characters at PDX on May 4, 2025. (Courtesy: Molly Ishkanian)
  • Raiden Pham (center) was given a proper sendoff by volunteers dressed as Star Wars characters at PDX on May 4, 2025. (Courtesy: Molly Ishkanian)

Tommy Pham, Raiden’s father, thanked the crowd for being a part of “such a special moment.”

“We’re built on hope,” he said. “We’re on this journey to fight against this rare disease, to raise awareness, to fundraise for research and make the impossible, possible. May the Force be with you.”

In 2021, Raiden’s family also launched the Raiden Science Foundation, which spearheads privately funded research efforts to develop the first-ever clinical trial for UBA5 gene therapy.

Share this @internewscast.com
You May Also Like

Trump Plans to Reactivate Alcatraz Prison

NEW YORK (AP) — President Donald Trump has announced his intention to…

St. Petersburg Grocery Store Ranked as America’s Best Overall: Study Finds

A grocery store in St. Petersburg, Florida, has been recognized as the…

Treasury Secretary Scott Bessent Supports Trump’s ‘Economic Rebalancing’ Strategy

Treasury Secretary Scott Bessent defended what he called President Trump’s “economic rebalancing”…

Survey Reveals Increased Concern Among Floridians About This Year’s Hurricane Season, Says AAA

TAMPA, Fla. (WFLA) — With hurricane season approaching, more than a quarter…

Texas Man Ditches Ankle Monitor and Escapes on Day of Murder Trial

() A man charged with capital murder in Texas has disappeared on…

Armed man shot and killed by deputy outside Indiana courthouse

DANVILLE, Ind. A man was shot and killed by police Monday outside…

Chicago Museum Director Placed on Leave Following Alleged Incident on Plane

CHICAGO (WGN) – The president of the Art Institute of Chicago is…

Police Hunt for Man Who Fled Custody at Seattle Airport

() Port of Seattle Police are searching for an inmate who escaped…

Man Found Guilty in 2019 Rape Case at Whitemarsh Island Apartment Complex

CHATHAM COUNTY, Ga. () — A man has been found guilty and…

“Enthusiastic and Spirited: Oregon Coast Aquarium Introduces New Blind Seal”

PORTLAND, Ore. (KOIN) – While she’s the youngest and smallest seal to…

Schumer Criticizes Trump’s Stance on Supporting the Constitution

Senate Majority Leader Chuck Schumer (D-N.Y.) on Sunday blasted President Trump for…

Bill O’Reilly: Trump’s Carter-like doll remark lacks strategic thinking

() Political commentator Bill O’Reilly said President Donald Trump’s comments about kids having…