U of I researchers giving a voice to cancer survivors, family members

CHAMPAIGN-URBANA, Ill. (WCIA) — Nearly everyone touched by cancer carries a unique story. Researchers at the University of Illinois are now seeking to compile these narratives into a project named “Cancer Voices,” and they are calling on the community for participation.

Craig Richard, a postdoctoral researcher, and Azlan Guttenberg Smith, a PhD candidate, joined WCIA 3’s Kelly Finley to discuss their initiative.

The “Cancer Voices” team aims to conduct interviews with individuals such as cancer survivors, their family members, medical professionals, and administrators, capturing personal stories that will later be crafted into a video. Ultimately, these stories will be transformed into a live performance to be showcased in Central Illinois.

“As a scientist, I’m interested in supporting other researchers in developing tools to study cancer. However, I also wanted to gain a deeper understanding of patients’ experiences, their interaction with cancer research, and their perception of cancer care,” Richard explained.

The focus is on people whose stories often go untold.

“There’s a focus on giving voice to those whose stories are often unheard and facilitating the exchange of experiences. For example, a doctor seldom gets the chance to fully understand their patient’s profound experiences, and conversely, the patient might not know the hectic realities faced by their doctor. This project aims to enhance cancer care across the board,” Smith added.

Interviews will continue until early April. Anyone who has been affected by cancer, such as patients, survivors, and family members, is encouraged to reach out to Cancer Voices if they wish to share their story. More information is available here.

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